Experiences of mothers of children with Down syndrome.

Sari H. Y., Baser G., Turan J. M.

Paediatric nursing, vol.18, no.4, pp.29-32, 2006 (Scopus)

  • Publication Type: Article / Article
  • Volume: 18 Issue: 4
  • Publication Date: 2006
  • Doi Number: 10.7748/paed2006.05.18.4.29.c1024
  • Journal Name: Paediatric nursing
  • Journal Indexes: Scopus, Academic Search Premier, CINAHL
  • Page Numbers: pp.29-32
  • Dokuz Eylül University Affiliated: No

Abstract

This qualitative study explored the experiences and lifestyles of families in Turkey with children with Down syndrome, including the impact on family members. Twelve mothers with a Down syndrome child (three from each of the age groups 1-3 years, 4-6 years, 7-12 years and 13-18 years of age) participated in the study. The data were collected during in-depth interviews and were evaluated using qualitative data analysis methods. Families were affected socially, physically, economically and emotionally by having a child with Down syndrome.