A novel assessment tool for clinical care of patients with autoinflammatory disease: juvenile autoinflammatory disease multidimensional assessment report

Konukbay, D.; Gattorno, M.; Yildiz, D.; Frenkel, J.; Acikel, C.; Sozeri, B.; Makay, B.; AKTAY AYAZ, Nuray; BARUT, Kenan; PAÇ KISAARSLAN, AYŞENUR; Bilginer, Y.; Karaman, D.; Peru, H.; Simsek, D.; Aydog, O.; Unsal, ŞEVKET; Gunduz, Z.; Fidanci, B.; Kone-Paut, I.; KASAPÇOPUR, Özgür; Ravelli, A.; Ozen, S.; Demirkaya, E.

A novel assessment tool for clinical care of patients with autoinflammatory disease: juvenile autoinflammatory disease multidimensional assessment report

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Konukbay D., Gattorno M., Yildiz D., Frenkel J., Acikel C., Sozeri B., ...More

CLINICAL AND EXPERIMENTAL RHEUMATOLOGY, vol.34, no.6, 2016 (SCI-Expanded)

Publication Type: Article / Article
Volume: 34 Issue: 6
Publication Date: 2016
Journal Name: CLINICAL AND EXPERIMENTAL RHEUMATOLOGY
Journal Indexes: Science Citation Index Expanded (SCI-EXPANDED), Scopus
Keywords: auto-inflammatory disease, outcome instrument, multidimensional, proxy report, familial Mediterranean fever, FAMILIAL MEDITERRANEAN FEVER, QUALITY-OF-LIFE, INITIAL VALIDATION, HEALTH, SEVERITY, QUESTIONNAIRE, CHILDREN, PAIN
Dokuz Eylül University Affiliated: Yes

Abstract

Objective. To develop and test a new multidimensional questionnaire for assessment of children with auto-inflammatory disease (AID) such as FMF, PFAPA, HIDS, TRAPS in standard clinical care.