Physical workload during caregiving activities and related factors among the caregivers of children with cerebral palsy


Eminel A. G., Kahraman T., GENÇ A.

IRISH JOURNAL OF MEDICAL SCIENCE, cilt.190, sa.2, ss.701-709, 2021 (SCI-Expanded) identifier identifier identifier

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 190 Sayı: 2
  • Basım Tarihi: 2021
  • Doi Numarası: 10.1007/s11845-020-02337-w
  • Dergi Adı: IRISH JOURNAL OF MEDICAL SCIENCE
  • Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Scopus, Biotechnology Research Abstracts, EMBASE, MEDLINE
  • Sayfa Sayıları: ss.701-709
  • Anahtar Kelimeler: Caregivers, Cerebral palsy, Musculoskeletal pain, Quality of life, Workload, EXTREMITY FUNCTIONAL SCALE, CROSS-CULTURAL ADAPTATION, QUALITY-OF-LIFE, TURKISH VERSION, NECK PAIN, DISABILITY, MOTHERS, VALIDATION, QUESTIONNAIRE, RELIABILITY
  • Dokuz Eylül Üniversitesi Adresli: Evet

Özet

Background Caregiving demands contribute to both psychological and physical health of caregivers. Physical workload (PW) can be an important cause of musculoskeletal disorders in caregivers of children with cerebral palsy (CP). Aims To investigate PW during caregiving activities and related factors among caregivers of children with CP. Methods Children with CP (n= 291) and their caregivers (n= 291) were recruited for this cross-sectional study. Caregivers were categorized as their child has presence of intellectual disability (ID) and independent walking ability. Gross motor function was assessed using the Gross Motor Function Classification System (GMFCS) in children. PW; presence and distribution of musculoskeletal pain sites; levels of disability of neck, low back, arm, and leg; levels of depressive symptoms; and health-related quality of life (HRQOL) were assessed in caregivers. Results Significant differences were observed in PW, low back pain-related disability, depressive symptoms, and HRQOL between caregivers of children with and without an ID (p< 0.05). All study variables were significantly different between caregivers of children who can and cannot independently walk (p< 0.05). PW was correlated with caregiver's age, body mass index, lower extremity dysfunction, depressive symptoms, and child's GMFCS level (p< 0.05). Conclusions Caregivers of a child having an ID and walking disability had higher PW. These caregivers had more problems related to musculoskeletal disorders, higher depressive symptoms, and lower HRQOL. Higher PW was associated with lower level of gross motor function of child and older age, higher body mass index, higher level of lower extremity disfunction and low back pain disability, and lower HRQOL of caregivers.